Sunday, July 7, 2013

Normal Is Relative

Last night was pod change night. I called Charlotte into the kitchen, and she slouched in and said, "I just don't feel like dealing with this right now, Mom." And...I totally got it.
My alarm goes off, and I hit snooze and go back to sleep. The dryer beeps, but I leave it for a few hours days. It's time to start dinner, but I decide we can eat a half hour late tonight. It's Saturday...a good yard yard still looks like the set of a horror film. If I don't feel like dealing with something, I don't have to. But Charlotte can't put it off. When it's pod change night, it's pod change night. She has to deal with it even if she doesn't feel like it at that moment.
We hugged and talked about it, and in the end all was well better. Most days she doesn't care, but at that time in that moment, it was too much. I'm surprised it's not too much more often. After all, she's only six, but I credit that to her being diagnosed at 20 months. This is her normal - the only normal she remembers, and how often do kids not like to deal with their normal? Most kids are cool with their normal the majority of the time, and she is no different.
Last night is already forgotten, and the next pod change will be uneventful, I'm sure. After all, normal is relative, and this is hers...until there is a cure.

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